KENNEDY DISEASE · SBMA
Understanding today.
Understanding today.
Hope for tomorrow.
Hope for tomorrow.
Embedded Files
We advance education, awareness, support and research for Kennedy disease, and open doors to learning for the next generation.
Explore our work → What is Kennedy disease?
Where would you like to start?
Where would you like to start?
01
I’m living with Kennedy disease
I’m living with Kennedy disease
Accessible information about SBMA and referrals to healthcare and community services.
Find information →
02
I’m family or a caregiver
I’m family or a caregiver
Resources and community for the people who walk alongside someone with SBMA.
Find support →
03
I’m a student or young researcher
I’m a student or young researcher
Mentorship, science projects, research placements, scholarships and bursaries.
Explore learning →
04
I’m a professional or researcher
I’m a professional or researcher
Educational programs, conferences, research and ways to collaborate with us.
Collaborate →
UNDERSTANDING THE CONDITION
What is Kennedy disease?
What is Kennedy disease?
Kennedy disease · SBMA
Spinal and bulbar muscular atrophy
Kennedy disease, also known as spinal and bulbar muscular atrophy (SBMA), is a rare inherited neuromuscular condition that affects muscle function.
Clear, accessible information and supportive communities can help individuals and families better understand the condition and connect with the right resources.
OUR FOCUS AREAS
Three pathways. One shared purpose.
Three pathways. One shared purpose.
Three connected commitments — to people, to young learners, and to scientific understanding.
01
Education, awareness & support
Education, awareness & support
Educational resources, workshops, public awareness, patient support and referrals for people affected by SBMA, their families and caregivers.
02
Youth education, mentorship & careers
Youth education, mentorship & careers
Learning pathways for students through mentorship, structured education, research exposure, science projects, scholarships and bursaries.
03
Kennedy disease research
Kennedy disease research
Supporting scientific, medical, educational and social research into the causes, diagnosis, treatment, management and impact of Kennedy disease.
OUR MISSION
Education can make a meaningful difference.
Education can make a meaningful difference.
We promote health and advance education through accessible learning, patient and community support, youth development and research concerning Kennedy disease.
• Awareness
• Awareness
• Research
• Research
• Support
• Support
FROM THE FOUNDATION
News & upcoming events.
News & upcoming events.
NEWS & ANNOUNCEMENTS
Stay connected with our mission
Stay connected with our mission
Foundation updates, program announcements and community news will be shared here as they become available.
Updates coming soon
WORKSHOPS & EVENTS
Learn and connect
Learn and connect
Educational sessions, conferences and community events will be published here once dates are confirmed.
Dates to be announced
BUILDING A MORE INFORMED FUTURE
Meaningful change begins with connection.
Meaningful change begins with connection.
Whether you are seeking information, exploring learning opportunities or hoping to collaborate, we would love to hear from you.
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